I've been sitting and stewing on an issue for almost a week now. It's a big one, and one that's going to be affecting Australian couples who are infertile and turning towards IVF in the near future.
If you'd like to read about it, please follow this link. In summary: The government is planning to cut funding to fertility treatment, thus increasing the out of pocket costs for IVF treatment, as well as reducing the current public health rebates.
Now, before I begin, let me be the first to say something;
I AM SO GRATEFUL FOR MY DAUGHTER.
I've said it before, and I'll say it again every day for the rest of my life... but I feel like I need to reiterate this before I begin this tirade, because I'm sure that folks will be quick to remind me of how lucky I am to have her (I KNOW) and that I should consider myself blessed to have one child (I KNOW) or that I'm even able to access IVF at all (I KNOW) ... so there, it is.
So let's get back to the issue at hand. Do I have issues with this policy changing, as of January 1st? Absolutely. This is one which will affect us directly - and as a couple who are already using a more 'budget' clinic, it leaves our options rather limited. We can't move somewhere more affordable, or swap clinics again - there simply isn't anywhere else to go.
As it is, we've spent thousands of dollars on IVF cycles and additional medications that go along with them. The barely covered specialist appointments, the additional bloodwork and genetic testing that isn't covered by any rebates at all, the miscarriage procedures & pathology - add these in to our overall cycle costs for all of our fresh and frozen rounds of IVF, and it adds up. So much so that I don't even want to tally it all, because the figures will be terrifying.. and that's WITH the help of rebates. I have friends using the bigger clinics here, and their out of pocket costs are even more staggering.
People seem to think that with IVF being on the Medicare system, that means that we pay nothing. I don't think they realise that we are out of pocket every single time we attempt a cycle, whether it works or not. For each of my freeze all cycles, cycles we didn't even get to transfer an embryo, we still paid out of pocket... for not even a shot at a pregnancy. Yes, we're lucky enough to get partial subsidies from the public health system, but we are STILL paying... and with no guarantee!
The comments on these articles are heartbreaking.
I'm sure they are spoken flippantly by folks who either haven't dealt with infertilty themselves, or haven't known anyone personally who is going through all of this... but the ignorance astounds me.
Just adopt.
Realise that you weren't meant to have children, accept it and move on.
Stop using tax payers dollars, just pay for it yourself.
You don't deserve special financial help because you're female.
Why should you be entitled to have children that are funded by the rest of us?
Did I mention just adopt?
You can call me oversensitive, and tell me to "just deal" with my issues regarding infertility - and I won't debate you. Just ask the multitude of counsellors we've seen over the years, and are seeing now. Trust me, we're dealing with it. Just getting through each day of feeling the disappointment and overwhelming sadness that is infertility and loss, that's me dealing with it.
Infertility isn't a medical condition, you say? Children are a choice? Go ahead and talk to my very concerned GP and psychologist, who are working with me on strategies to deal with the anxiety and depression that have now taken hold, after spending countless years and dollars trying to conceive. Not having more children is a choice we can't accept just yet - not until we've given it literally everything we've got. Some folks don't even get that chance.
As for people complaining that people take advantage of the system and use IVF too many times - are you serious? Do you think we WANT to be doing this over and over again? Ask any woman, or couple, who are going through this kind of treatment - we all want this part over with. We're talking about invasive medical procedures, coupled with profound emotional disappointment and physical repercussions... we'd LOVE it if it worked the first time. Reality is, it doesn't work that way.
I'd like to invite these folks who show no sympathy for infertile couples to do some research on adoption in Australia.
We have virtually no systems in place for adoption here. Fostering, yes. Short term care, yes. International adoption? Not even a remote possibility, unless you have tens of thousands of dollars and a willingness to wait for years - with no guarantee of a successful adoption. Once again, I put it to you: do you think that the majority of infertile couples wouldn't have considered this, or done the homework? Aside from coming to terms with the emotional loss of a biological child (not something to be taken lightly for a lot of folks), it becomes very quickly obvious that adoption is not an option for most, whether they would be happy going down that path or not. It's just not that simple.
My husband & I have been infertile since our 20's. We have medical conditions that are the cause for our infertility, and we have no genetic reasons so far to explain our miscarriages, despite plenty of testing. We have not "put off" having children because we have other, more important things in life. We have been together since we were 18/19, and are very happily married as we speak - and all we ever wanted was a family to call our own. We are STILL young, fertility wise - 31/33 as of this moment. We work hard, we save hard, we limit our spending and don't do fancy things... because we are sensible, we don't get government hand-outs, and we are putting every cent we have towards expanding our family.
Am I bitter because I can't have children on my own? You're damn right. What I wouldn't give to be able to simply plan for a pregnancy, have a little lovin' and pop out a baby like seemingly everyone else on the planet.
Here's the thing; the public system and safety net funds all sorts of conditions and treatments. Do I complain, because my "tax payer dollars" pay for a lung transplant, or cancer treatment, for someone who CHOSE to smoke and developed a medical condition? Do I complain, because my "tax payer dollars" are helping someone have a knee replacement because they CHOSE to run marathons and have injured themselves? Absolutely not! Because health care is something that should be available for all of us who are living, working & contributing to Australia's future.
And really.. do they think that we're not tax payers ourselves? We have worked and paid our taxes our entire lives, just like everyone else... so when we need to utilise the system for the first time, why should we have that option taken away from us?
This policy change scares me. As if IVF and infertility treatment wasn't hard enough to deal with from an emotional perspective, the thought that we might have to stop because of finances.. well, it's a real kick in the guts. It makes me think of others who aren't so lucky, or who haven't been able to try for their dream of having a family; places where there is no coverage what-so-ever... and it makes me angry. Australia is a place that is special to me, and I've always been grateful for its public system and the way it supports its citizens - but now, it just leaves me filled with dread.
IVF is not a choice we make lightly. It's not a go-to for people who are lazy, or who leave it too late to have children, or for folks who want designer babies. I just wish people would stop being so quick to judge, and to have a little compassion for those of us who are unlucky enough to have this burden on our shoulders.
Without access to IVF, we wouldn't have our daughter. This amazingly stubborn, strong-willed, pocket rocket of a child, who brings us so much joy. I can't fathom life without her, and I can't fathom why folks wouldn't want others to experience the happiness that she has brought us.
And that's all I have to say about that.
Monday, 16 November 2015
2 Comments •
Labels:
Blah Blah PCOS,
Emotions,
Infertility,
IVF,
Life in Oz,
Loss,
Miscarriage

My beta levels were down to 53 on November 2nd.
They dropped to 19 on November 6th.
They're still 9 today on November 10th.
More bloods in a week. I am a human pincushion right now, and not even for a fun reason.
Bloody fucking hell, the universe must really hate us. It just needs to get < 5 for me to start a new cycle, but no, apparently I can't even miscarry a pregnancy properly!
So here we are... still stuck in this limbo. Fun times! Somebody pour me a wine.
Tuesday, 10 November 2015
2 Comments •
Labels:
Baby #4 (m/c),
Blah Blah PCOS,
Chemical Pregnancy,
FET,
HRT,
IVF,
Loss,
Miscarriage,
New Clinic,
Not Pregnant

Levels have started dropping, so it's time to stop all meds & wait for the inevitable.
Just when I was starting to hope. Another one gone, just like that. How did we get here?
I am just so utterly sad.
Monday, 2 November 2015
8 Comments •
Labels:
Baby #4 (m/c),
Blah Blah PCOS,
Chemical Pregnancy,
FET,
HRT,
IVF,
Loss,
Miscarriage,
New Clinic,
Not Pregnant

Today is 17dp4dt - or 21dpo - or 5 weeks pregnant.
Obviously my numbers don't match up to ANY of those figures, but here we are. Limbo!
I've managed to wrangle my blood test forward a day, so it's tomorrow now instead of Tuesday. We'll hopefully know with a little more clarity, and it's no good dragging things out any longer than we need to.
I feel pregnant. Queasy, off foods, hot flashes, headaches, exhausted. I'm still on all the meds - oestrogen & progesterone - so yes, it's very likely that it's more to do with them than it is my super low hcg hormones.
I'm still peeing on sticks, because it feels like the one thing I can control at this point... and they are tearing my heart out, because they're telling a story that is likely going to be shattered by tomorrow's blood test results.
These results were from Friday and Saturday, and they appear to be darkening. What a tease, right?
Ah, well. Not much else I can do but wait and continue praying for a miracle, even if the odds are slim.
Sunday, 1 November 2015
2 Comments •
Labels:
Baby #4 (m/c),
Blah Blah PCOS,
Chemical Pregnancy,
FET,
HRT,
Infertility,
IVF,
Loss,
Miscarriage,
New Clinic,
Not Pregnant,
Programmed,
Progynova,
Round #5,
Trying for Baby #4

It's not looking good.
This morning I had bloods drawn for my 18dpo doubling hcg test. To improve upon my number from Tuesday, we were aiming for an hcg increase up to 100.
At 18dpo, it was 81. (Progesterone was 30.)
The nurse didn't sound hopeful & told me it looked as though our embryo implanted, but obviously isn't doing well - so by Tuesday, we'll know one way or the other. It's like a cruel joke, isn't it? More waiting, and not the good kind.
Thursday, 29 October 2015
6 Comments •
Labels:
Baby #4 (m/c),
Blah Blah PCOS,
Chemical Pregnancy,
FET,
HRT,
Infertility,
IVF,
Loss,
Miscarriage,
New Clinic,
Not Pregnant,
Programmed,
Progynova,
Round #5,
Trying for Baby #4

I had my 16dpo beta today. Ideally, they'd like the number to be at 100 for this point in time.
Tuesday, 27 October 2015
6 Comments •
Labels:
Baby #4 (m/c),
Blah Blah PCOS,
Chemical Pregnancy,
FET,
HRT,
Infertility,
IVF,
Loss,
Miscarriage,
New Clinic,
Not Pregnant,
Programmed,
Progynova,
Round #5,
Trying for Baby #4

The quick version: FET #7 seems to have resulted in a chemical pregnancy.
The long version: FET #7 has been a cruel, cruel experience & has left me feeling defeated.
After
the transfer of our little morula/early blastocyst, things got busy. We went to a concert the following
night, which was amazing but loud; I jokingly commented that the
little embryo had probably already vibrated right on out of there!
The next day, Georgia and I hopped into the car with my
folks for an impromptu beach getaway. Hubby couldn't take time off due
to a new job role starting, so it was just us. A good five hour drive up
the coast later, we settled in to our holiday accommodation and spent
the next little while relaxing.
I packed a single pregnancy test
into my luggage. I thought that would help me from obsessing during the
TWW. While I have it in my head that all frozen transfers are going to
fail, I was surprisingly hopeful about this embryo. It's the nicest one
we have had in a while, the lab scientists were happy, and I was happy
too.
I started having symptoms from around 6dp4dt. Incredibly
tired, aching back, sore boobs and a WHOPPER pimple that devoured my
chin. The last time I had a breakout like that was last October, when I
was pregnant. My skin always goes nuts before anything else!
I
caved that night and peed. It was negative. Blindingly negative. I was
kicking myself for testing too early, and went to the local grocery
store to top up on pee sticks. The next morning was 7dp4dt, so I peed
again. Once again, blindingly negative.
I've always had a line,
albeit a squinty line, by 11dpo, in all of my previous pregnancies. It's
basically my cut off, so I figured that was that. I chucked the pee
sticks in the bin in a rage and considered this to be yet another
failure.
8dp4dt was not a great day. I was snippy and crotchety
and absolutely starving. Oh, and mad at the universe. We took Georgia to
the beach and kept ourselves busy the entire day. I didn't pee on any
sticks that day.
Since it was 9dp4dt, or 13dpo, I figured I
would stop my pessaries and throw in the towel. I'm on a fairly hefty
dose of progesterone for transfers now because of my previous losses -
so it can take a while for a bleed to occur after stopping the
pessaries. If there's one thing I hate doing, it's needlessly waiting
around. I'd rather just move on, and get going again.
I peed on
the stick, and went to shower. After I was done, I looked back at the
stick and prepared to throw out the negative result.
Except it wasn't negative.
It wasn't dark, but it wasn't a squinter. It was a faint but visible second line. I
then proceeded to have a panic attack on the bathroom floor, wearing
nothing but my towel. It says pregnant. But it's faint. Is it TOO faint
for 13dpo? It has to be too late now. It's probably a chemical. What if it's actually worked? What do I do now?
I'm
sure most people would get a positive result on a pee stick and take
for granted that all is fine, and not spend hours examining the strength
of the line. Anyone who has lost a pregnancy will understand my terror, I think. This positive was throwing me for a loop.
My
IVF friends have a saying: prepare for the worst but hope for the best.
I was doing this, yes, but I'll admit, I was hoping for a miracle. We
all hear stories of people who had a really late positive, or a really
faint pregnancy test, or a really late implanter. Maybe this time, I
could be one of those folks?
Unfortunately, I was not.
This
morning's was fainter. This afternoon's was even fainter. Like, really
faint, almost squint-worthy. Well, shit.
I have a beta blood draw in two days time. Judging by the pee sticks, there won't be much, if anything, to see by then.
I'm so angry. I'd prefer this to have been a flat out negative - not this chemical pregnancy limbo again. Why does this keep happening? Our testing show we have no genetic issues, my recurrent pregnancy loss blood work all came back normal, but man.... I don't even know anymore. The bad luck run continues.
So I'm apparently pregnant. But I won't be for long.
This sucks.
Sunday, 25 October 2015
5 Comments •
Labels:
Baby #4 (m/c),
Blah Blah PCOS,
Chemical Pregnancy,
FET,
HRT,
Infertility,
IVF,
Loss,
Miscarriage,
New Clinic,
Not Pregnant,
Programmed,
Progynova,
Round #5,
Trying for Baby #4

We are PUPO! FET #7... and a transfer that finally brought a smile to my face.
You guys... a GOOD embryo! That looks nice! That isn't behind! This is all we've been praying for.
It's a funny feeling having an embryo transfer on October 15th, on Pregnancy and Infant Loss Remembrance Day. This time last year, I was mourning our pregnancy loss. Little did I know that later that month, I would lose yet another pregnancy. This year, I'm lighting two candles for the little ones we've lost - and hoping with everything that I have, that maybe this little embryo in my uterus can stay.
I've lost a lot of hope over the last few years, but I'm throwing everything we've got at this one. Meet our newest embryo that's on board. It's a far cry from the sad one we transferred last time, that's for sure. :)
Thursday, 15 October 2015
11 Comments •
Labels:
Blah Blah PCOS,
FET,
HRT,
Infertility,
IVF,
New Clinic,
Programmed,
Progynova,
Round #5,
Trying for Baby #4

I've been quiet lately, I know. It's so hard to update when there is absolutely nothing to update about. Waiting, more waiting. I've been drowning in pregnancy announcements these past few weeks, and it hasn't been pretty.
How much longer do we have to be the ones sitting on the sidelines and smiling through blinding tears, watching someone else get to experience everything we've been dreaming about? Why are we being 'greedy' by wanting to give our kid a sibling? Why is the only news we ever seem to get always bad news?
As you can imagine, things have been pretty bumpy over here. I'm so tired, you guys. I'm tired of this whole thing. It's ironic; something that should be one of the easiest things in the world, one of the happiest times of your life, being something that leaves you terrified and so, so angry. You don't know what I'd give to be able to think about getting pregnant, and then.. ya know.. get pregnant.
I refuse to apologise for wanting to give my daughter a sibling. I refuse to apologise for fighting for this with everything I have, because we are not giving up on this dream. I refuse to apologise for feeling the way I do - because you know what? This is a shitty situation to be in, one that I wouldn't wish on my worst enemy, and it SUCKS.
When you think about all the worst case scenarios we've had happen to us in the last two years, it's almost laughable. It gets to a point where you've decided to be hopeful and to ignore things that have happened in the past, because 'it can't possibly get any worse!' - and then it does. And you're left there at the end, not quite sure what to make of it all. Is this all a sign? Am I cursed? It just feels like a bad luck streak that's never ending.
Tomorrow we have a scan and blood test, and I have this terrible feeling in my gut that we're going to end up having another cancelled cycle. I can't explain it; I've had twinges that remind me of cysts I've had previously - but yeah... it just feels like a bad omen. I'm crossing everything that I have and I HOPE I'm wrong! Wouldn't it be ironic to round out the year with more crappy news?
Anyway, I'll keep on keeping on, and I'll cope in the way that works the best for me. And if it means staying in hibernation mode, and focusing on my own little family for a little while longer, so be it.
Thursday, 8 October 2015
5 Comments •
Labels:
Emotions,
FET,
Infertility,
IVF,
Not Pregnant

After a cycle on the pill, we're gearing up to try again. This is going to be FET #7, all going well.
Nothing too exciting here: progynova (oestrogen) 3x a day, scan and bloods next week & then we see how everything is going.
If things look okay, we'll program in a transfer of one of the 4-day embryos. I asked if they'd grow them out, and they said no, they will do a morula transfer. I don't even have the energy in me to ask why, I'm just going with the flow this time around.
All of my questions and concerns and worries from previous rounds didn't have any impact on the outcomes, so I'm sort of going into this cycle fairly numb.. and with little to no expectations. Here we go again.
Thursday, 1 October 2015
5 Comments •
Labels:
Blah Blah PCOS,
HRT,
Infertility,
IVF,
New Clinic,
Programmed,
Progynova,
Round #5,
Trying for Baby #4










